WFCPC Contributes 70,000 CP Patient Data Points to National Cerebral Palsy Registry

The Weinberg Family Cerebral Palsy Center (WFCPC) has successfully submitted over nearly 70,000 patient encounter data to the Cerebral Palsy Research Network (CPRN)’s cerebral palsy registry, marking its largest data submission to date.

The CPRN hosts the nation's largest CP registry. The clinical registry brings together standardized clinical data from member institutions across the country to better understand cerebral palsy on a population level. By combining information from multiple institutions into a shared, de-identified registry, the network allows researchers and clinicians to understand CP care, treatment and outcomes at scale. The expanded registry will support studies on disease progression, improve clinical practice, and advance multicenter and quality improvement initiatives.

This latest data push is a key milestone in the WFCPC’s participation in the network, formally integrating its patient population into the broader dataset. The 69,633 encounters pushed were collected over a ten-year period. At the WFCPC, data is captured through clinical and patient-reported data during care visits with our multidisciplinary providers. 

The WFCPC joined CPRN in 2020 and contributes data, clinical expertise, and leadership to jointly advance research, quality improvement initiatives, and health outcomes for people with cerebral palsy.