WFCPC Presentations at the 79th AACPM Conference

Members of the WFCPC multidisciplinary team will be presenting at the 79th Annual AACPDM Conference in New Orleans in October. The conference brings together global experts in cerebral palsy to share updates and ideas to bring the field forward. Please refer to the schedule below for presentation times and venues.

Presentations  

Neuro and Basic Science 1 (THU 10/16, 12:30PM) 

Moderator: Steven Lazar, MD and Jennifer Bain, MD 

“Dare to Try”: Understanding Participation in Physical Activity for Children and Adolescents with Cerebral Palsy (THU 10/16, 1:08PM) 

Katherine Dimitropoulou, Ph.D., MSPOR, OTR/L, Eliott Hu, HScD, Jacqueline Chen, BS 

10-Year Outcomes of Risdiplam & Nusinersen on Functional Outcomes and Hip Migration in Patients with Spinal Muscular Atrophy: A Retrospective Cohort Study (THU 10/16, 1:15PM) 

Varun Arvind, MD, PhD, Emma Berube, MD, Benjamin Lynch, BA, Alysala Malik, BA,  

Michaela O’Connor, MD, Joshua E. Hyman, MD 

Culturally Sensitive Care and Disability: Leveraging Interactions with the Healthcare System (THU 10/16, 3PM) 

Verónica Schiariti, MD MHSc PhD, Azucena I. Garcia, BA, Hana Azizi, MD, MPH, Marina Ma, MD 

Empowering Engagement in Physical Activity for Children and Adolescents with Cerebral Palsy: A Community-Based Participatory Model for Community Organizations, Researchers, and Clinicians (FRI 10/17, 1:45PM) 

Mara M. Yale, PhD, Jacqueline Chen, BS, Eliott Hu, HScD, Brian D. Wishart, DO, MMS, FAAP, Katherine Dimitropoulou, Ph.D., MSPOR, OTR/L 

Spasticity Management Across the Lifespan in Cerebral Palsy: A Longitudinal Perspective (SAT 10/18, 8AM) 

Heakyung Kim, M.D., Hana Azizi, MD, MPH, Rajashree Srinivasan, MBBS 

Cardiovascular Regulation Impairment in Children Following Brain Injury (SAT 10/18, 8AM) 

Brian D. Wishart, DO, MMS, FAAP, Katherine Dimitropoulou, Ph.D., MSPOR, OTR/L, Mara M. Yale, PhD 

Neuro and Basic Science 2 (SAT 10/18, 9:15AM) 

Moderator: Jason Carmel, MD, PhD and Alexandra Santana Almansa, MD

Prioritizing Treatment: Chronic Pain, Mood Disorder and ADHD in Patient’s with Cerebral Palsy (SAT 10/18, 10:30AM) 

Minnelly Vasquez, LCSW, Agnes Whitaker, MD, Hana Azizi, MD, MPH, Elisabeth Bates, MSN, Eduardo del Rosario, Jr., PhD, FNP-BC 

Poster Presentations  

Fun, Food and Friendship: Building a More Vibrant Community with the Biggest Community Event Dedicated to Cerebral Palsy 

Jacqueline Chen BS, Jennifer Pimentel BA, Belkis Tavarez Gonzalez, Minnelly Vasquez LCSW, Eduardo del Rosario PhD, FNP-BC, Jamie Montgomery, Lisa Yoon DPT, Katherine Dimitropoulou Ph.D., MSPOR, OTR/L, Jason Carmel MD, PhD 

Late Onset Presentation of Progressive Encephalopathy (PEBEL-1) in a Patient with Homozygous NAXE2: A Case Report 

Yelim Chung MD, Samantha DiSalvo MD, Elisabeth Bates MSN, Jennifer Bain MD, PhD, Hana Azizi MD, MPH 

Delayed Diagnosis of Tethered Cord in a Patient with History of Lumbar Myelomeningocele and Low Back Pain 

Elisabeth Bates MSN, Yelim Chung MD, Sandy Huang MD, Hana Azizi MD, MPH 

An Atypical Case of a Low Trauma Left Medial Collateral Ligament Avulsion Fracture Following Casting for Ankle Foot Orthosis in a Patient with Niemann-Pick Type C 

Sandy Huang MD, Yelim Chung MD, Elisabeth Bates MSN, Hana Azizi MD, MPH 

Recurrent Seroma After Intrathecal Baclofen Pump Replacement Due to Underlying Break in the Catheter Seal 

Samantha DiSalvo MD, Yelim Chung MD, Hana Azizi MD, MPH 

Risks of Polypharmacy with Anti Spasticity Medications in an Infant with Quadriplegic Cerebral Palsy 

Elisabeth Bates MSN, Yelim Chung MD, Sandy Huang MD, Hana Azizi MD, MPH 

A Novel Model of Neuromuscular Contracture Reveals Pathological SMAD4 Signaling in Myotendon Drives Contracture Formation 

Varun Arvind MD, PhD, Hui Zhang PhD, Peter Shyu, Edward Guo PhD, Joshua Hyman MD, Alice Huang PhD